Recent Updates

The Genetic Non-Discrimination Act was passed into law on May 4, 2017.

For now the GNA is law and the genetic test information of all Canadians is protected.

Some clinicians from the HD Community are making it clear on patient files that genetic information is protected and not to be shared without explicit written consent of the patient. In your communities this may be a good suggestion to health care professionals.

The Quebec government has now filed a reference with Quebec Court of Appeals. If the Quebec court rules against the GNA, the case will go to the Supreme Court of Canada.

CCGF is working with lawyers and constitutional experts to advocate for this law so it is not overturned.


Click here to see the updated statement on the use of genetic information from the Privacy Commissioner