Privacy Policy

This notice explains our on-line information practices. By visiting the Huntington Canadian Coalition for Genetic Fairness/Coalition Canadienne pour l’equite genetique at (and any of its variations) you are accepting the practices described in this policy.

Defining Personal Information

Personal information is any information that can be used to distinguish, identify or contact a specific individual. This information can include an individual’s opinions or beliefs, as well as facts about, or related to, the individual. Exceptions: business contact information and certain publicly available information, such as names, addresses and telephone numbers as published in telephone directories, are not considered personal information.

Where an individual uses his or her home contact information as business contact information as well, the Coalition considers that the contact information provided is business contact information, and is not therefore subject to protection as personal information.

Privacy Practices

Personal information gathered by the CCGF/CCEG is kept in confidence. Staff are authorized to access personal information based only on their need to deal with the information for the reason(s) for which it was obtained. Safeguards are in place to ensure that the information is not disclosed or shared more widely than is necessary to achieve the purpose for which it is gathered. The Coalition also takes measures to ensure the integrity of this information is maintained and to prevent its being lost or destroyed.

The Coalition collects, uses and discloses personal information only for purposes that a reasonable person would consider appropriate in light of given circumstances.

Information Gathered from the website

Two types of information are collected:

  1. Personal, or ‘individually identifiable’, information you provide to us; and
  2. Standard Web server/visitor traffic information, commonly referred to as “aggregate information,” regarding overall Web site traffic patterns. We do not report on individual user sessions. Web servers normally collect this type of basic information as part of their web log processes.

Aggregate Information

In addition to information provided by our visitors, we use the normal internet tracking tools associated with standard internet protocols and web-based systems. This system information is typically stored in log files and the information is used for aggregate reporting. Aggregate reporting includes total number of visitors, most visited sections, peak traffic times, etc. Log files are simply transaction records web servers maintain. Those logs are used for recording information, such as:

  • service provider IP addresses
  • browser versions
  • referring Web sites
  • search terms used
  • average number of pages requested
  • average duration of visit
  • total visitor traffic.

We use aggregate information gathered from your visit to better design our Web site. This information supplies us with a broad picture of how people use our Web site in order to help us better serve our audience.

Application of this Policy

This Privacy Policy applies only to the CCGF/CCEG Web site. Please be aware that the Coalition is not responsible for the privacy practices of other Web sites to which it has links. We encourage you to read the privacy statements of each and every Web site that requests personal information from you.

The CCGF/CCEG reserves the right to change this policy at any time.

Contact Information

For questions or comments about the CCGF/CCEG’s on-line Privacy Policy, please feel free to email the us at: